TY  - JOUR
A1  - Kübler, Andrea
A1  - Hautzinger, Martin
A1  - Ludolph, Albert
A1  - Dickhaus, Thorsten
A1  - Real, Ruben G. L.
T1  - Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
N2  - Objective: The aim of this longitudinal study was to identify predictors of instantaneous well-being in patients with amyotrophic lateral sclerosis (ALS). Based on flow theory well-being was expected to be highest when perceived demands and perceived control were in balance, and that thinking about the past would be a risk factor for rumination which would in turn reduce well-being.

Methods: Using the experience sampling method, data on current activities, associated aspects of perceived demands, control, and well-being were collected from 10 patients with ALS three times a day for two weeks.

Results: Results show that perceived control was uniformly and positively associated with well-being, but that demands were only positively associated with well-being when they were perceived as controllable. Mediation analysis confirmed thinking about the past, but not thinking about the future, to be a risk factor for rumination and reduced well-being.

Discussion: Findings extend our knowledge of factors contributing to well-being in ALS as not only perceived control but also perceived demands can contribute to well-being. They further show that a focus on present experiences might contribute to increased well-being.
KW  - amyotrophic lateral sclerosis
KW  - ALS
KW  - coping
KW  - well-being
KW  - experience sampling
KW  - ESM
KW  - reminiscence
KW  - rumination
Y1  - 2014
U6  - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:bvb:20-opus-113057
ER  -